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So in case you’re just tuning in, we are in the hospital with Rae. She has a staph infection (third one since June) and E. coli and wasn’t responding to antibiotics at home, so her Kennedy Kreiger doctor said to be more aggressive and do IV antibiotics to wipe out the infections quicker. So here […]

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Last Tuesday we had Rae’s gtube placed.It should have been 2 nights then home Thursday morning.But if you know anything about Rae, she refuses to do anything standard.So after 10 days,7 blood draws,5 antibiotics,4 bags of IV fluids,4 IV changes,3 hours of sleep,an ultra sound,a barium contrast X-ray,a staph infection (possibly MRSA? They never confirmed),a […]

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Yesterday sucked. I woke up at 3:30, despite taking a unisom the night before. I did laundry, cleaned the counters, vacuumed, and cleaned the bathroom, followed by chugging 7 cups of coffee (it’s disgusting that this isn’t an exaggeration) and listening to Carry On on repeat until it was time to drop Little S off […]

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